Reports from people with tinnitus, and from their doctors, on what they tried and what actually happened. These are experiences, not clinical trial results, but together they can show where a closer look is worth it.
Anyone who has tried a treatment for tinnitus can fill out a short report: what they took, how much, how often, how loud the noise was before and at its best, whether the effect faded, and any side effects. Physicians can report on a patient’s behalf.
I read every report and add them here each month. Reports are shown only when the person gave permission, and never with a name or email. Every report, shown or not, counts toward the totals.
Primidone (Mysoline)
The registry opened in October 2026. Totals for each treatment will appear here once there are at least ten reports for it, so that no single experience, including mine, sways the picture. Until then, individual reports are shown below.
PatientMore than 15 yearsPrescribed
Dose
25 mg for two weeks, then 50 mg
Schedule
Monday, Wednesday, Friday; weekends off
Change noticed
Within a few days
With daily use
Faded after about five or six days
On the schedule
Kept working
“Within days, the noise was noticeably lower, not gone, but less than I had lived with for decades.”
Have you or a patient tried primidone? Add your report, whether it helped or not.
Other treatments
No reports yet for GABA, magnesium, valerian root, ashwagandha, sound therapy, or anything else. If you have tried one of them, yours could be the first.
How to read these results
People who had good results are more likely to report them. That can make any treatment look better than it is, which is why reports where nothing helped matter so much.
Reports are not verified. They are what people tell me, in their own words.
Tinnitus varies. What helps one kind may not help another, and loudness ratings are personal.
This is not medical advice. Please don’t start, stop, or change any medication because of what you read here. Primidone is not approved for tinnitus, and any decision about a prescription medication belongs with your physician. Diallo Kantambu is not a physician, audiologist, or licensed healthcare provider.